Trying to figure it all out

Well, I guess I can say that things are in the works. Wyatt's SSI application is still pending. I anticipate that he is going to be denied from a monetary stand point. They are basing their decision off of our income from October, which is when I received my short term disability checks, so it looks like we make a lot more than we do since I now have no income. So we will have to go through the appeals process. We also send in applications for Medicaid, and the Medicaid buy in program. I don't believe we are going to qualify for regular Medicaid, and we are going to have to do the buy in program, meaning we will have to pay a monthly fee to have Wyatt carry Medicaid as a secondary insurance. We have been lucky that people are so giving and helpful, and have been getting formula samples which have been a tremendous help in cutting costs. Our neighbor also pointed me towards a place to get diapers for Wyatt, and we should start receiving those the day after Christmas. Again, a huge help in cutting costs. Now we just have to wait and see of the government is going to do anything to help us, or if we're on our own.

Things at home are going pretty well. Wyatt is doing well, and is very smiley and talkative. Austyn is doing well and is very excited for Christmas. DJ and I are looking forward to Christmas with both boys, and trying to figure out life with two boys at home, and how to balance all of life's changes- my not working, financial burdens, schedule changes, medical needs, etc.

Having a heart baby has been so very different than I could have anticipated. There have been parts that have been easier than I thought they would be, an parts that have been much longer difficult. Wyatt's second surgery is constantly looming over my head at this point. I am terrified, to say the least. I don't want to see my baby like that again, I don't want him to have to endure this all over again. But, I know that if all goes well, once we get through the Glenn, we will be able to live a more normal life for a while, until Wyatt's Fontan. We will be able to leave the house with Wyatt. Well be able to do things as a family outside of the home. An hopefully, my constant fear will subside a bit.