Post Glenn life is Exhausting

I think I let myself believe far too strongly that life was going to be easy when we got home from the hospital after Wyatt's Glenn. I let myself believe that I would be getting adequate amounts of sleep, and that I would be able to get the "other" things done around the house each day (i.e. laundry, dishes, cleaning, etc.). HA! Hilarious. It didn't pan out, that's for sure. The first few days we were home were extremely daunting - Wyatt was in pain, and all around un happy, we were exhausted, and paranoid. There were times where we both just slept on the couch because it was easier than trying to go to bed. But, once Wyatt's pain got under control and he wasn't needing around the clock Tylenol, and hadn't taken his stronger pain meds in a few days, I figured things would start to go back to normal. 

Tomorrow is 14 days post Glenn, and we are definitely not back to normal yet. Wyatt's sleeping patterns are a wreck. He won't sleep more than 2 hours at a time, day or night. Prior to surgery, he slept in his bassinet just fine, and now we are trying to work back towards that, but a lot of times we have to sleep on the couch with him, or he won't sleep. He also likes to kick, which keeps him awake, and I have resorted to holding his legs against my body to make them feel snuggled, so he won't kick. He has also become VERY sensitive. It's like all of his senses are on edge. He is jumpier at noises than he used to be, and he only likes his Mommy and Daddy right now. No one else has tried to hold him, but even just getting near him makes him pout and cry. 

Needless to say - I am exhausted. Today is only the second day that DJ is back to work, and I am already ready for it to be Friday - simply so I can sleep more than 3 hours in my bed. I know that this phase we are in is going to pass, and that it isn't forever, so I am not too entirely worried, but, still. Yikes. 

On other fronts - we are in the process of filing bankruptcy. I suppose that isn't the sort of thing most people would share on their blog, huh? Oh well - the point of all this is for other heart parents/potential heart parents to see how life REALLY is - and this is part of it. We will be giving both of our vehicles up in the bankruptcy (they are leased) so we had to purchase a vehicle for me to drive the boys in. We found a decent Ford Escape, and thankfully, the title transfer and emissions tests went through fine. Wyatt is also about to be too tall for his infant car seat. We have a Grace SnugRide, which only goes up to 29 inches, and Wyatt's only got 2-3 inches left, so I had to buy him a convertible car seat. And, we bought a bath that doubles as a scale so I can continue to monitor his weight. Austyn is doing very well, and DJ is getting back into the swing of things at work. I am re-adjusting to the fact that my reflection in the mirror includes bags under my eyes once again, and trying to be more than a zombie throughout the day, while also keeping my cool for 16 hours at a time while dealing with Wyatt, and trying to calm him down from his frequent fits. 

At the end of the day - things are going fine, they're just frustrating for right now. Wyatt sees his cardiologist this afternoon, so I will be sure to post about that sometime afterwards :)

Be well!